Tuesday, September 18, 2007

The Plan

Lauri and I met with the Thoracic Surgeon today. We discussed what kind of surgery Lauri will have, the risks involved, schedule, and recovery. This will be another long post, with plenty detail on the surgery procedure. For those who prefer, here is the cliff notes version:

Lauri is scheduled for the first of two surgeries on October 17. The surgeon will work on Lauri's left lung to remove the tumor that is nearest the heart first. Six weeks later, on or near November 28, Lauri will undergo the second surgery to remove the two tumors in the right lung. After each surgery, a 5-7 day stay at the MD Anderson Hospital is expected, followed by recovery continuing at home.

And now for the details...

The Thoracic Surgeon confirmed that a "Stage Thoracotomy" is the preferred approach for Lauri's condition as opposed to a Sternotomy. A Sternotomy involves accessing the lungs via incision in the center of the chest, breaking the sternum bone, as in open heart surgery. This method, while providing access to both lungs simultaneously, generally results in the surgeon removing larger portions of lung tissue.

A Stage Thoracotomy involves working on one lung at a time. The surgeon generally only takes small sections of lung tissue in this case. For Lauri, the surgeon will work on her left lung first. There will be a ~4-5 inch incision parallel to the ribs, located around the middle of the rib cage on the left side of her back. Once incised, muscle is moved out of the way (a process referred to as "muscle sparing") and the ribs are literally spread apart enough to gain access to the lung.

The surgeon will use his hands and a bronchial scope (a scope placed through the trachea into the lung) to locate the tumor. The tumor will then be recessed (cut out) along with margin. Margin is simply surrounding tissue (about a millimeter to a couple millimeters thick), which is removed to guarantee the surgeon gets all of the cancer cells. According to the surgeon, he will not have to remove very much extra lung tissue, such as removing an entire lobe, to remove the tumor.

Chest tubes will be placed at the site to allow for drainage of fluids out of the area surrounding the lung. The chest tube is a large tube (perhaps 1 inch in diameter) that is placed near the lung, through the incision site, and connected to a container to collect the drainage. Once the wound is no longer draining, the tube will be removed. We expect this to occur around 2-3 days after surgery.

Lauri will be put to sleep during the surgery, as well as receive epidural pain medication during and after surgery. The epidural line will remain in place for around 3 days. Afterwards, Lauri will be put on oral pain medication for as long as she needs it...Yeah, that's what I'm thinking too...

We expect to be discharged from the hospital 5 to 7 days after the surgery. We will continue recovery at home, with expected "pain and discomfort" to persist for about 4 to 6 weeks. We will return to the hospital for the second surgery on the right lung 6 weeks after the first surgery, or around November 28. It is expected that Lauri will retain much of her lung capacity after both surgeries are completed.

The surgeon has decided to work on the left lung first because the tumor in the left lung is located near the heart. The two tumors in the right lung are not near other organs, and are considered lower priority (they can wait...).

The greatest risk of this surgery is the risk of pneumonia. To combat pneumonia, Lauri will have to do very frequent lung exercises using a tool called an "Incentive Spirometer". Open heart surgery patients use these too, so you may be familiar with them. The Incentive Spirometer requires the patient to inhale deeply and slowly, trying to draw enough air to keep a marker "ball" within a specified location. The device exercises the lungs while also providing a measure of lung capacity, and causing the patient to inhale deeply. Short breaths can lead to a pneumonia condition, and patients with chest pain are known to draw short breaths.

Lauri will also have to do arm exercises, basically stretches, to maintain full range of motion of the arms as the incision heals. She will not be permitted to pick up anything heavier than a newborn (so this means she can work then??). The information we received actually says that the patient cannot use a vacuum cleaner either, due to the pushing action....figures...

We really like our Thoracic Surgeon. He is very patient with us, and covered all of the details thoroughly. He has a good handle on Lauri's condition, and is very proactive in getting us all the help and information we need. He is also very straight with us, and wanted us to understand a very important point:

The chemotherapy and surgery process is 30-40% effective in curing the disease. While these odds are better than nothing, they are far short of a guarantee. We need to be prepared in the event the surgery is not successful in completely removing the disease. While Lauri's three nodules show up clearly in the CT scans, there may be more nodules out there, small enough to not show up on the scans and small enough that he cannot feel them during surgery. It only takes a single cell to split and grow into a tumor. If the tumors return, we will likely continue chemotherapy, followed by additional surgery.

I mention the above statement because while we have fought hard and fought well, the fight truly never ends. Even if we are cancer free after this surgery, others are not. We all have to work to prevent, in addition to cure, the cancer.

We are confident that the surgery will be successful in removing the tumors from Lauri's lungs. We must accomplish at least this in order to get to our final goal of becoming cancer free. We are blessed to have great doctors, family, and friends that fight along side us and keep us going.

It has been a hard path so far, having to stand by and watch as Lauri has lost hair, weight, and sometimes her lunch... But one thing she has never lost is her heart. It has been an inspiration to watch her continue to push forward even in the midst of great difficulty and pain. I pray that this surgery finally brings some release and reprieve from the cancer. But I am thankful that I am blessed to walk through life with such a great friend and wife.

5 comments:

Anonymous said...

I always enjoy reading your positive comments, because attitude is everything! And I love the humorous asides... Let us know our marching orders.
MizBarbara

Anonymous said...

Hi Lauri & Jeff! I was extremely happy to hear some good news from Ellen concerning your treatment. I am also proud to be part of a family that includes the two of you; your faith, positive attitude and deep commitment to each other is a real inspiration.

On another note, I checked with our local Ruth Gandour Memorial Blood Bank, which is doing a blood drive this week at the Dow Chemical Plaquemine site, about the possibility of participating in the blood replacement plan with MD Anderson. I received a response today authorizing this and their email noted to release whatever is needed. I will forward the e-mails to your e-mail addresses.
Love you both,
Aunt Linda

Johnny B said...

Thanks for blogging about your experience. I found your blog as I was searching for more definite answer to the recovery time from a thoracotomy.
This is of interest to me as it was discovered that I had a large, grapefruit sized, tumor in my mid-left chest. The biopsy was indeterminate and I had a thoracotomy to remove the tumor on June 8th of this year. Fortunately the tumor was benign so I don't have to do the chemo thing again (Hodgkin's lymphoma back in 1980). And although the tumor was starting to press up against the aorta and heart, the tumor was outside the lung so my lungs weren't touched .

Listen to your doctor, do the breathing exercises (it hurts at first), and stay as active as you can. I was back to walking short distances quickly, and got back on a cruiser style bicycle (upright sitting position) at 6 weeks, about the same time I went back to work. But it's been 15 weeks now and there's still pain and numbness in my left chest although it's more of a discomfort and doesn't stop me from doing too much (running would still be uncomfortable). I actually rode my commuter bicycle 66 miles at the end of August.
But I never could get my surgeon to tell me how long to expect the pain and discomfort to last. All I ever heard back was months.
But I think in your case the thoracotomy is the least of your worries.
My best wishes to you. I hope they get the tumors out clean and that the chemo takes care of anything they can't get.
Stay strong, stay positive and God Bless.

Anonymous said...

Thanks, Jeff, for all of the information. One hardly has a need for questions after reading your thorough postings. There seems to be time before Lauri's surgery when she should be feeling okay so that you both can have a quick getaway and just enjoy yourselves. Hope you can take advantage of it! As far as the surgery goes, I have already made my reservations so I can be close at hand. Keep positive, Love, Mama

Anonymous said...

Lauri and Jeff, it's awesome to hear that y'all are done with the chemo finally. And I'm really glad you guys have found some great doctors. 'Cause generally speaking: doctors, oye. I'm probably going to burn some more bridges with that comment. Well, I thought I'd include a quasi-humourous YouTube clip. I don't know if y'all have already seen it if you guys are YouTube freaks. Don't expect much. It's this low budget puppet show with some Harry Potter characters. It's no Team America. Click for Potter Puppet Clip I really wish I could do something more substantial. I mean, I'm pretty clueless if I racked my brain and the puppet show is what I came up with. Alright you guys, well, wave the fists, kick some a$$, and take care, T.